Lewy Body Dementia Association, Inc.

kirsten

Does anyone know who the best docs in LA are??? My MIL is seeing a nuerologist in Thousand Oaks who has other LBD patients, but how do I find out if he's the best?
_________________
curious/confused daugther-in-law

robin · Posted: Sun Nov 01, 2009 4:44 pm Post subject:

Is Irvine too far? I think very highly of Dr. Neal Hermanowicz at UCI. He's a movement disorder specialist.

I recently handled brain donation arrangements for an Oxnard family. The gentleman with LBD sees Dr. Robert Hutchman at the Hutchman Neuroscience Center in Reseda. The family really likes Dr. Hutchman. I heard him speak recently and thought he was terrible but the topic was not LBD-specific.

kirsten · Posted: Sun Nov 01, 2009 4:49 pm Post subject:

It's pretty dang far... but if we don't find the perfect doc closer, I'll keep him in mind. thanks. Smile

_________________
curious/confused daugther-in-law

robin · Posted: Mon Nov 02, 2009 7:49 pm Post subject:

Two other ideas for how to get referrals:

1) call the APDA Information & Referral Center nearest you and tell them "Robin Riddle from Stanford" recommended you contact them for an LBD MD referral. See apdaparkinson.org for a map/list of the Information & Referral Centers in the US.

2) call the nearest chapter of the Alzheimer's Association and ask them for an LBD MD referral. See alz.org

kirsten · Posted: Mon Nov 02, 2009 9:34 pm Post subject:

thank you Robin, I appreciate the info. K
_________________
curious/confused daugther-in-law

raffcons · Joined: 27 Jan 2007 Posts: 707 Location: CA

Dr. Neal Hermanowicz is much more a PD specialist and when I spoke with his office (he also practices in Rancho Mirage/Palm Springs) they really didn't feel an LBD patient would benefit as much as from a dementia specialist.

I'd suggest Dr. Helena Chui, head of USC's Memory and Aging Center at the Keck School of medicine who is a brain-behavior dementia specialist. Before Jerome and I moved to Indiana, I had an assessment scheduled for him with Dr. Chui and was very impressed with the pre-appointment stuff that we were asked to complete.
_________________
Renata (and Jerome)

kirsten · Posted: Tue Nov 03, 2009 10:56 pm Post subject:

thanks for that. k
_________________
curious/confused daugther-in-law

robin · Posted: Sat Nov 07, 2009 7:49 pm Post subject:

Got a few more names for you to ask around about:

At UCLA's Alzheimer's Disease Center:
Jeffrey L. Cummings, MD, Director
John Ringman, MD
http://www.adc.ucla.edu

At Cedars-Sinai Medical Center's Memory Disorders Program:
Robert M. Cohen, MD, PhD
http://www.csmc.edu/12934.html

I suggest that you consult with the APDA Information & Referral Center Coordinators (mentioned above) to get the inside scoop on these MDs.

kirsten · Posted: Sat Nov 07, 2009 9:28 pm Post subject:

Thanks Robin. We are in the process of finding a new facility for MIL to move into. Once we've got her settled, I will work on finding her a new doctor.

I appreciate your in-put. This is becoming a full-time job! Smile

Kirsten
_________________
curious/confused daugther-in-law